I just wanted to give you all an update. as you all know i had my little girl but she had become ill. Well it turns out my little princess was born with a genetic condition called Incontinentia pigmenti. its a rare genetic condition which effects her in so many ways ( skin,hair,teeth,seizures and other thngs). and as she gets older things are just going to get harder for her. because the condition is so rare there inst many doctors that can tell us what to expect for her future. so what im trying to do is raise awareness for this condition so maybe more research can be done on it. so that in the future if any other children are born with Incontinentia pigmenti they will have a better start and more help. and maybe more can be done for the little angels who already have this illness.
Incontinentia pigmenti blog.
Incontinentia pigmenti website.
I want to ask a big favour from all of you, would you please help me to spread the word about this condtion, so we can help other children like my princess.